Life is Beautiful, Enjoy the Ride -- A Poet's Guide to Chronic Illness

Life is Beautiful, Enjoy the Ride -- A Poet's Guide to Chronic Illness
Author: Mitch Koppel
Publisher: First Edition Design Pub.
Total Pages: 127
Release: 2014-05-10
Genre: Body, Mind & Spirit
ISBN: 1622876172

At the young age of 23 Mitch Koppel received a devastating diagnosis of multiple sclerosis. Twenty years of extreme health challenges inspired him to express his journey through poetry. These poems immediately went viral with friends and family to the extent that they urged him to create a book about the story and the poetry it inspired. I don't wish MS on my worst enemy; even if I had a worst enemy. Actually, over our 20-year relationship, my worst enemy has been myself all along and I'm not about to give MS to myself one more time. In truth, as counter-intuitive as this may sound, it was recently refreshing to hear that my MS has sort of reached its end game. I heard this in the hospital no less. I won't get any worse because I'm 1% of the folks that have reached a sort of illness finality. I wasn't upset to hear this. I was actually thrilled because never again will I lose sleep over what the disease had in store next; will my limp get worse, will I one day need a walker or, God forbid, a wheelchair? It's all here now; a path of physical and oft times' mental destruction. I have a white flag, but it's never been raised. You see, I'm not defined by MS. I'm not defined by what's next. I'm not defined by its progress. I'm defined, or would like to be defined by breaking down barriers and setting an example for friends and family alike; especially for my boys. I used to agonize, summarize and theorize that I wasn't worthy. Other dads coached sports. I sat aside. Other dads played catch. I sat aside. Other dads would twirl their children in their arms, suspend them in the air and run around in the yard. I sat and stared. Then it hit me: my boys often call without a reason to tell me they love me. Griffin likes to lie on the couch and play a game he made up called, "Five Kisses." It used to be called "Three Kisses", but he wanted more. Instead of self-pity, I try as best I can to live with self-worth. It has had a domino effect on my soul. As the last tile lands forward, the words on it read, "Not today, MS. Not today." Blame games were a symptom of the past. Spirituality has played a major role in turning grief into accepting I have everything else left to live for, smiles to share and love to let grow; this was and is my new awakening. Like many ill or infirmed, the seasons change but hearts and minds may be frozen. In my heart. In my soul. In dark evenings of emptiness inside sunny days where I closed the blinds, the miracle of spirituality found, the quiet of my soul and memories of what I hope to never endure again. Ultimately, like rivers and streams, all things run into one and passes through illness from times long since passed. Each room, every bed and endless ticking of the room's clock began from the basement of time. A fly on the wall could tell countless stories of pain and suffering, of waiting and wondering, of tears and sorrow. Of a belief of a better tomorrow. Those before me leave fingerprints revealing it was their time and place. Some of those fingerprints come to life under every room's bright hospital lights. Beneath the lights are the echoes of their words. I am haunted by hospitals.


You Don't Look Sick!

You Don't Look Sick!
Author: Joy H. Selak
Publisher: Demos Medical Publishing
Total Pages: 199
Release: 2013
Genre: Chronic diseases
ISBN: 1936303426

Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.


I Love Jesus, But I Want to Die

I Love Jesus, But I Want to Die
Author: Sarah J. Robinson
Publisher: WaterBrook
Total Pages: 257
Release: 2021-05-11
Genre: Religion
ISBN: 0593193539

A compassionate, shame-free guide for your darkest days “A one-of-a-kind book . . . to read for yourself or give to a struggling friend or loved one without the fear that depression and suicidal thoughts will be minimized, medicalized or over-spiritualized.”—Kay Warren, cofounder of Saddleback Church What happens when loving Jesus doesn’t cure you of depression, anxiety, or suicidal thoughts? You might be crushed by shame over your mental illness, only to be told by well-meaning Christians to “choose joy” and “pray more.” So you beg God to take away the pain, but nothing eases the ache inside. As darkness lingers and color drains from your world, you’re left wondering if God has abandoned you. You just want a way out. But there’s hope. In I Love Jesus, But I Want to Die, Sarah J. Robinson offers a healthy, practical, and shame-free guide for Christians struggling with mental illness. With unflinching honesty, Sarah shares her story of battling depression and fighting to stay alive despite toxic theology that made her afraid to seek help outside the church. Pairing her own story with scriptural insights, mental health research, and simple practices, Sarah helps you reconnect with the God who is present in our deepest anguish and discover that you are worth everything it takes to get better. Beautifully written and full of hard-won wisdom, I Love Jesus, But I Want to Die offers a path toward a rich, hope-filled life in Christ, even when healing doesn’t look like what you expect.


Healing from the Inside Out

Healing from the Inside Out
Author: Nauman Naeem
Publisher: Simon and Schuster
Total Pages: 226
Release: 2017-09-12
Genre: Health & Fitness
ISBN: 1844097749

Unleash your infinite potential and heal your chronic illness. This book takes you on a journey to the very core of your being. This is done through unravelling layers and layers of density that most of us accumulate throughout our lives, and which often initiate and perpetuate chronic disease. Once you touch the light of your being, you illuminate the dark recesses of your thoughts, emotions and your physical body, thus facilitating the healing of any chronic illness. The exercises given in this book allow you to gain more clarity about your life’s mission, heal old emotional wounds, lift subconscious blocks, remove limiting beliefs, enter the natural flow of the Universe and fearlessly embrace uncertainty. Dr. Naeem is a critical care specialist, pulmonologist and palliative care specialist, whose unique insights into healing stem from caring for tens of thousands of critically and chronically ill patients for more than a decade in two countries. This experience, combined with his own search for the meaning of existence and the true nature of ultimate reality, has culminated into the incredible journey which is the subject of this book.


Odes to Lithium

Odes to Lithium
Author: Shira Erlichman
Publisher: Alice James Books
Total Pages: 101
Release: 2019-09-01
Genre: Poetry
ISBN: 1948579596

Captivating poems and visual art seek to bring comfort and solidarity to anyone living with Bipolar Disorder. In this remarkable debut, Shira Erlichman pens a love letter to Lithium, her medication for Bipolar Disorder. With inventiveness, compassion, and humor, she thrusts us into a world of unconventional praise. From an unexpected encounter with her grandmother’s ghost, to a bubble bath with Bjӧrk, to her plumber’s confession that he, too, has Bipolar, Erlichman buoyantly topples stigma against the mentally ill. These are necessary odes to self-acceptance, resilience, and the jagged path toward healing. With startling language, and accompanied by her bold drawings and collages, she gives us a sparkling, original view into what makes us human.


The Autoimmune Wellness Handbook

The Autoimmune Wellness Handbook
Author: Mickey Trescott
Publisher: Rodale
Total Pages: 308
Release: 2016-11-01
Genre: Health & Fitness
ISBN: 1623367298

The way autoimmune disease is viewed and treated is undergoing a major change as an estimated 50 million Americans (and growing) suffer from these conditions. For many patients, the key to true wellness is in holistic treatment, although they might not know how to begin their journey to total recovery. The Autoimmune Wellness Handbook, from Mickey Trescott and Angie Alt of Autoimmune-Paleo.com, is a comprehensive guide to living healthfully with autoimmune disease. While conventional medicine is limited to medication or even surgical fixes, Trescott and Alt introduce a complementary solution that focuses on seven key steps to recovery: inform, collaborate, nourish, rest, breathe, move, and connect. Each step demystifies the process to reclaim total mind and body health. With five autoimmune conditions between them, Trescott and Alt have achieved astounding results using the premises laid out in the book. The Autoimmune Wellness Handbook goes well beyond nutrition and provides the missing link so that you can get back to living a vibrant, healthy life.


Sometimes I Lie

Sometimes I Lie
Author: Alice Feeney
Publisher: Flatiron Books
Total Pages: 272
Release: 2018-03-13
Genre: Fiction
ISBN: 1250144833

ALICE FEENEYS NEW YORK TIMES AND INTERNATIONAL BESTSELLER “Boldly plotted, tightly knotted—a provocative true-or-false thriller that deepens and darkens to its ink-black finale. Marvelous.” —AJ Finn, author of The Woman in the Window My name is Amber Reynolds. There are three things you should know about me: 1. I’m in a coma. 2. My husband doesn’t love me anymore. 3. Sometimes I lie. Amber wakes up in a hospital. She can’t move. She can’t speak. She can’t open her eyes. She can hear everyone around her, but they have no idea. Amber doesn’t remember what happened, but she has a suspicion her husband had something to do with it. Alternating between her paralyzed present, the week before her accident, and a series of childhood diaries from twenty years ago, this brilliant psychological thriller asks: Is something really a lie if you believe it's the truth?


The Black Maria

The Black Maria
Author: Aracelis Girmay
Publisher: BOA Editions, Ltd.
Total Pages: 122
Release: 2016-04-18
Genre: Poetry
ISBN: 1942683030

Taking its name from the moon's dark plains, misidentified as seas by early astronomers, The Black Maria investigates African diasporic histories, the consequences of racism within American culture, and the question of human identity. Central to this project is a desire to recognize the lives of Eritrean refugees who have been made invisible by years of immigration crisis, refugee status, exile, and resulting statelessness. The recipient of a 2015 Whiting Award for Poetry, Girmay's newest collection elegizes and celebrates life, while wrestling with the humanistic notion of seeing beyond: seeing violence, seeing grace, and seeing each other better. "to the sea" great storage house, history on which we rode, we touched the brief pulse of your fluttering pages, spelled with salt & life, your rage, your indifference your gentleness washing our feet, all of you going on whether or not we live, to you we bring our carnations yellow & pink, how they float like bright sentences atop your memory's dark hair Aracelis Girmay is the author of two poetry collections, Teeth and Kingdom Animalia, which won the Isabella Gardner Award and was a finalist for the NBCC Award. The recipient of a 2015 Whiting Award, she has received grants and fellowships from the Jerome, Cave Canem, and Watson foundations, as well as Civitella Ranieri and the NEA. She currently teaches at Hampshire College's School for Interdisciplinary Arts and in Drew University's low residency MFA program. Originally from Santa Ana, California, she splits her time between New York and Amherst, Massachusetts.


Girl Behind Dark Glasses

Girl Behind Dark Glasses
Author: Jessica Taylor-Bearman
Publisher: eBook Partnership
Total Pages: 261
Release: 2019-09-04
Genre: Biography & Autobiography
ISBN: 1999805364

From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro immune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old. From beneath her dark glasses, Jessica glimpses a world far different from the one she remembers as a teenage school girl. This true story follows her path as she ends up living in hospital for years with tubes keeping her alive. This harrowing story follows the highs and lows of the disease and being hospitalised, captured through her voice activated technology diary called `Bug' that enables her to fulfil her dream of one day becoming an author. It provides a raw, real-time honesty to the story that would be impossible to capture in hindsight.